Saturday, November 19, 2011

Day 63: Frankie will be coming to one bright house!

Well, the Christmas lights started going up today. They will be on for display on Black Friday. A huge thank you to those who came and helped today-Johnny, Brandon, Jackie, Jaimi, Aiden, Mike, Marsha and Tino. We appreciate it so, so much! You all were so helpful today!

Whenever Frankie comes home, the house will be covered in Christmas lights. He will love it! He loves looking at lights! I can't wait to see him look at them.

Frankie had a good day. He spit up a little bit during the day but a little bit more this evening. We think it's because we move him around more rather than him lying in bed. The Pepcid does seem to be helping though because he isn't spitting up as much. His oxygen is currently on .1 and he is taking it well. He stats have been great. Hopefully we can keep it at this level and maybe even try him without it before we head home. It's all in Frankie's hands! Speaking of hands, don't forget to wash them before touching the little man (you'll be hearing this from me at least once every time now that I write the blog). :)

Nothing else has changed. Still on Sildenafil (this is more long term), not too interested in bottles (he took 6ml for me), steroid ween, his O is still smaller and it looks great. Lots of skin growing up on it.

Frankie gets to meet his Great (great in more than one way) Aunt Beth on Monday! I am really looking forward to this. She will be arriving tomorrow evening and the rest of the family will be here later this week. It's going to be a blast! Turkey day is such a great holiday!

That's all for now. Sending love to you all!





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