Day 42: Frankie Ferrigno Roid Rage

Frankie Fairchild has roid rage. Plain and simple. But before that, lets mention tonight's visitors. When we arrived, my father, stepmother and stepsister were already here. It was Jaimi's first time meeting the boy. She cried. Being a mother herself, she just couldn't understand how we are doing this. Guess what, neither do we. But we chose to carryout this pregnancy, we are responsible for this little guy, and we love him more than life itself and wouldn't trade it for the world. Unfortunately we had a few more guest tonight and kinda, unintentionally ignored the family while they were here. The Capriano family came by also and we got to see Miss Sophia for the first time since she was born. She is 4 weeks older then Frankie Fairbanks and they have an arranged marriage. The lovely Miss (which should be Mrs.) Hollie also came by for the evening.

Unfortunately for our visitors, Frankie Faulk has not been feeling well. The steroids he is on are clearly making him crawl in his own skin. It is terrible to watch, nothing consoles him. He is a strong boy and I have a tough time holding him while I change his diaper, wrapping, or bath. He has been pissed before and cried for a couple hours, but normally exhausts himself and it's over. Not so much on the roids. He is inconsolable and this lasted for 4 plus hours until we finally had to give him a sedative. He is quite asleep now, but it is terribly hard to see him like this. But the rewards will outweigh the pain, so we have to continue these. It is until Thursday when he has the echo. My heart really goes out to the boy, I hate seeing him like this. This is going to be a rough week ahead, so you might wanna not read the blog until Thursday. If day 2 was this bad, day 7 is gonna suck. I just hope that this improves the PPHN and Frankie Fallon hasn't done this in vain.

As far as the omphalocele goes, we have a little concern with it. We noticed a, for the lack of better terms, a blood blister on it. It was about 2 inches by 1 inch but shallow. The surgeons had a trauma case and therefore have not been by to see it since we found the defect on the defect earlier. I believe that it is a popped blood vessel or something like that from crying, screaming, and clawing/kicking so hard today with discomfort. It is not leaking nor has it been compromised in any other fashion, but still a reason to raise concern.

Has everyone paid any attention to Frankie Farley's nicknames lately? They have been themed. Can you figure out the what the theme is each day?