When we called in this morning to see how Frankie Fish was doing, we got some bad news about his morning. He had woken up around 4 am crying his eyes out. They didn't get completely settled until around 10 am we were told. They decided he was starved for oxygen and ended up cranking it all the way up to 4 liters per minute at 40%. They say he immediately responded to that and was better in no time. Tomorrow they will do another heart echo to see about his pulmonary hypertension. They expect him to grow out of this, but if he doesn't, they can treat it with nitrates or boner medicine as that is what it was originally invented for. Because of his breathing, they have stopped increasing his feed twice a day to once a day. He's now at 9cc's an hour. After this point, he could have trouble with spitting up and they didn't want this to hinder his breathing any more. He has been good for us all afternoon. He got upset for minute earlier, but that passed quickly into his diaper. I feel so bad for the guy being hooked up to all these machines. At one point he had 10 things connected to him. He is now down to 7. Oxygen via the nose, feeding tube via the nose, heart rate on one side of the chest, respiratory rate on the other side of the chest and on his side, oxygen saturation monitor on the foot and a picc line (peripherally inserted central catheter) in his arm instead of an IV. I personally get very upset and frustrated trying to move him around or get him up and play with him with all that foolishness hooked up to him. Alex's friend tall Kelly, her Marine and newly enlisted member of their family drove all the way up from Houston to see Frankie Lost Balls. While they were here, they also dropped in to see Kelly's sister Sarah's wedding. Boy was Sarah lucky that Kelly came up to see Frankie this weekend. Cody and the lovely Anna came up and visited us too. We walked over to the Majestic to have dinner. It was nice to get out of here and act normal for a minute. I knew the central west end was close, but it was less than a 5 minute walk to the Majestic. Which P.S., they stop serving pancakes at 3:30 in the afternoon. Who does this? Geezo. I had to settle for the Nacho's Grande Omelette (spell check says I spelled that wrong, but that's how they spelled it on their menu) and it was gnarly; gnarly good. They got some pictures of the omphalocele this morning for us. It is shrinking for sure. Although I don't think it looks smaller in pictures, it takes a lot less gauze to cover it. There is a red spot on it that I asked about, and hopefully they remember to ask the surgeons about it tomorrow. It is on the left side of it. In yesterdays blog, I said they gave him a water pill, well, I was misinformed about this. He did not receive a water pill, he just had a big whiz on his own. Included are quite a few pictures today, including some from his bath. If you look at it his mid section from the back, you can see how small of a cavity it is at the moment. All in all things are well. And momma is looking hot.
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