Feeding: when we were home, Frankie's feeding schedule was 32ml/hr- on for 3 hours, off for 1. Currently we are at 30ml/hr- on for 3 hours, off for 1. By tomorrow morning we will be back at full feeds! Then he can hopefully start gaining weight more quickly. As he gains weight, we will increase his feeds as well. I'm also really hoping that once he is around 4 months old, that we can try cereal and work our way to food.
Oxygen: Frankie was taken off of high humidity today! He is on 1 liter, off the wall (home type of oxygen). His saturation was at a steady 100. Tomorrow we will start weening more and see if we can get him to .6-.5. At home we were on .2!
Lasixs: Frankie is now only on them once a day versus twice a day. This is also something they want to try and ween him off of before we go home, unless he absolutely needs it, then we can go home one it. It's not something we were previously on at home.
Sildenifil: He's still on this. Same amount. Same number of times a day. This is a medicine he will be on steadily for quiet some time.
He's pooping well, not afraid of his bottle today (that's nice but he still didn't take any of it), smiling and cooing a lot more! He likes to hear himself "talk" and he has found his tongue... Hilarious! He's such a happy little fella! We are very lucky! We are also lucky to have all his nurses! WOW! They're amazing and so many are becoming such great friends. So blessed!
I have made a March of Dimes team for the tank! Join it! Or donate! Whatever your heart desires. Do it 'cause it makes you feel good! Here's the link to his team.
http://www.marchforbabies.org/s_team_page.asp?SeId=1763138&si=
Love to you all!!!
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