Monday, January 9, 2012

Almost home! Again.

We were scheduled to bring Tank home tomorrow but it is going to be just a couple more days. Currently Frankie's oxygen is on .7. This morning it was at 1 liter. I just don't feel comfortable bringing him home on 1 liter of oxygen because our machine at home only goes up that high. So, if Frankie has a huge fit or a crisis, we wouldn't be able to go up any further on his oxygen. We could go up to 2 liters on his portable tank, but those are so small and it would only last a short time. Probably just enough time to get to the hospital. Hopefully, we will never have to do that though!

What are the goals before we head out again?
- Get Tanks oxygen down to a better amount, like .5. That way we have some wiggle room.
- Get his Broviac taken out (was supposed to be done today but there were communication errors). Can't wait for this to come out (even though it'll be a small, uncomfy procedure).
That's it!

Feeding: Figuring out Frankie's feeding schedule used to be an absolute nightmare! Well, thankfully, he is keeping ALL of his food down! He hasn't spit up since we came in with all this madness! We did have to switch his fortifier though. He was getting Pregestimil and it gave him diarrhea and was "dumping" nutrients. He is now on Neocate and is handling that much, much better! I figured he would because Neocate is for mega sensitive, allergenic children. He is gaining weight well now, too. Hopefully we will have a chunky baby soon! He just keeps getting longer and the only visit spotting getting chubby are his cheeks and hands! So cute! He still has his skinny bird legs (that are constantly in motion if not sleeping!). Frankie still doesn't want anything to do with a bottle (don't blame him) but he will take sips out of a little med cup! It's adorable. So, I'm hoping we can get him to drink out of a cup and get rid of this ng... Someday....

Sleeping: No issues in this department. Frankie is up more during the day. He loves to play! He enjoys playing on his back and cooing up a storm! His legs are constantly in motion and he loves the sound of his own voice. He also enjoys sitting in his bumbo seat because he can sit up like a big boy!

I do think that's it for now. Overall, he's doing swell! The kid is truly a TANK! Oh, I did start a March of Dimes, March for Babies team called Frank the Tank! I would love for you all to join me during this march! It's in April. I will give the link to our team webpage below. March of Dimes is so great! They primarily advertise helping preemies but they also help babies with birth defects as well. While being here in the Nicu they have done lots for us! They have taken pictures, given us snacks, drinks, even catered in dinners and such! They're great and I would LOVE to support them and rally as many people as we can to help babies, especially ones like my Frankie bear with O's. Toughest kids I know! Thanks all! Love to each and every one of you! Here's the link to the team page and some super cute pictures of Tank himself!

http://www.marchforbabies.org/s_team_page.asp?seid=1763138








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