Frankie had a good day today! When I got here we worked on drinking breast milk. He still doesn't dig the bottle so we are trying cups. The cup we have found to work best thus far is a med cup! The actual cup for drinking is still a bit too big for him. He took 5ml from the med cup today! Gotta start somewhere! The speech therapist did suggest that we probably wait until 5 months to give him cereal just because he lacks experience with stuff in his mouth.
Frankie did a great time with tummy time today, too! Cutting a hole in foam had turned out to be a super idea! He tolerated it so well today and actually spent a fair amount of time doing it! He then continued to lay on the mat and attract every passer by with his big beautiful eyes and sweet raspy voice! He played a ton with ALL the nurses! He's such a stud.
He is still going strong on the 32ml/hr- on 3 hours off 1. We will continue this for awhile and watch him grow! And eventually keep increasing, too!
His air was down to .4 but we just tuned it back up to .6 because he seemed irritable and couldn't get comfy and sleep well. He's now resting great. We may have weened a little too much today but we don't know if we don't try!
There is talk of us going back home next week he if keeps up all the good work. So, keep the prayers rolling it!
I talked to Dr. Keller (surgeon) today and he said Frankie and his O look great! He said he just needs to "stay out of trouble" and hopefully we can start compression wrapping him as he gets bigger and grows out of his pphn. He did say that it would probably take a few surgeries to close him back up but we shall see. Time will tell!
That's all for now. Love you all!
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