So here's how it went. Frankie had an echo done to look at his asd repair and pphn. Surgery wanted Dr. Grady (cardiologist) to give the okay for them to repair his belly if his heart and lungs could handle it. Frankie did great during the echo. Chilled, watched his Elmo with daddy while Lu ate (as usual!). We went back to our room and Grady came in and gave the best news! NO evidence of pphn anymore! And the okay for belly surgery! AND no more sildenafil (Viagra)! He's been on that since birth! So now Frankie takes NO medications! How freaking sweet is that?! Dr. Grady feels as if Frankie will do well as he's shown us he can do. He said he may or may not do an echo right before the surgery since he will be off the meds but he's pretty much out grown his dose so there may be no need to do one. If that's the case, we won't see him for a year! Unless complications arise during belly surgery.
Joe and I are beside ourselves. This is the best news we've had in a long time! For them to tell us no evidence of pphn is unreal. When we first were told about it and explained the complications and the likely hood of him outgrowing it, we were so scared. It very well could've been what took his life. I remember the doctors just doing trial and error and being hopeful things would work and they have! Tears were in our eyes! And thankfulness in our hearts! It's not over yet but dang, what a hurdle that's been overcome! This child is truly a miracle! He doesn't even know how amazing he is yet! He's so special, a blessing. And I can't wait to see what all his life has in store for him!
Thursday we meet with the surgeons and I will update again after that. THANK YOU, THANK YOU all for all the prayers and support. They're working. For sure. Hopefully this belly surgery is the last hurdle for the tank to overcome. Love to you all!
Here are some pictures of his belly today. And step by step of how we wrap it. Pardon his weewee. I don't have an app to edit pictures on my phone.
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