Oxygen: We will be on this until after his hernia surgery in April. They are in no rush to get rid of this because it's simple and helpful. Once he has his hernia surgery and we are free and clear of anything breathing concerns, then hopefully we can say good bye to it!
NG tube: We hate it. So, we tried the sink or swim method and Frankie floated..... We ended up putting it back in because he wasn't taking enough by the bottle to not get dehydrated but he can take a bottle! So, we are just going to keep offering him a bottle each day and start to shorten the amount of time that his feeds are on so that he eventually gets all of his food over an hour and then his belly is used to having all of that volume at once and then we can give him a bottle and hopefully say adios to the NG!
Baby food: The pediatrician told me to wait until his 5 month appointment (which is Feb, 21st) to reevaluate the baby food situation. Well, I didn't see any harm in giving the little guy some rice cereal. So, every morning he has been getting some. He does well with it! He obviously isn't eating a ton but he opens up his mouth and accepts it. He may make a funny face but with each passing day he will grow to like it more and eat more!
Meds: All his meds are still the same. The plan is to let him out grow the doses of Lasixs and Sildenafil.
Development: Frankie is a little bit delayed due to his belly but not by a ton! He's doing so much now and his personality is really starting to shine through! He's such a sweet, good baby, truly. The main things we are working on are tummy time. He hates it but it's crucial for his development so it's another thing I just keep working on everyday. He has a speech therapist and a physical therapist that are supposed to come weekly but that doesn't ever happen! Lame! Good thing he has me! :)
I do believe that's all for now. He is doing wonderful! We still continue to wrap his O daily with a little bit of compression since it's still not the size it was before surgery. It'll get there again! It looks great though! It's all skinned over (with new reddish skin) except one small spot. The things this kid has done thus far in his life amazes me everyday! Toughest kid I know! LOVE HIM!
Love to you all and thanks for the continuous love, support and prayers!
Super excited!
He's so darn cute when he sleeps!
Frankie chews on his arm like it's a piece of fried chicken!
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