We have officially been back in the hospital for 10 days. In these 10 days, the three of us have gone on one hell of a ride! We went from, crap! Heading to the ER for dehydration, to oh shit! This is serious, to preparing ourselves to loose Frankie to watching him strive and totally kick his intestinal issues in the face! This kid is a rock star! We don't call him Tank for nothing!
As of today, Frank the tank is doing good! We are all impressed at how well, actually. He no longer has his replogle in. Thank goodness. That thing was huge! It was the tube that sucked the juices out if his stomach. Frankie has been successfully pooping! I never thought I'd get so excited about poop! He is now on Pedialyte. He is getting a continuous feed of it through an ng tube at the rate of 5ml/hr. I asked why we weren't bottle feeding and the surgeons want to just see how he does on the ng tube of Pedialyte for 24 hours. Introducing the bottle introduces air in the stomach and they don't want to do that yet. So, if he does well with this, we should be able to start him on breast milk tomorrow!
Frankie's sleeping schedule is finally getting back to normal again. He has slept pretty well the last 2 nights in a row. Let's hope he keeps it up!
Tank has lost some weight through out all of this. So, hopefully he takes breast milk well and we can fatten him up quicker this time. Eating shouldn't be as much of an issue as it was previously but we shall see!
We spent Frankie's first Christmas in the Nicu. Joe and I stayed here all day with him and opened his gifts with him. It wasn't the Christmas we had expected this year but we were happy he is doing well (most important) and we were happy to be in our second home with all our favorite nurses.
Frankie, Joe and I are truly blessed to have so many amazing people in our lives! From friends and family to nurses and doctors, we're so lucky! We hope that everyone had a great Christmas! And a huge thank you for all the prayers. It's so cool how they work!
I think that's it for now. Love to you all!
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