Thursday, August 23, 2012

"O" Thank Heavens!

Today I took Frankie to see Dr. Keller (pediatric surgery) about his O. It was so nice to zip in and out of the doctor with nothing but good news! We've just been dealing with so much because of his heart and lungs recently that I was afraid there would be just one more thing to add to the list. His O looks great! There's a lot of good skin growing up and around it. We no longer need to use silvadine unless a spot becomes raw from him scratching at it (when we unwrap it, he scratches like crazy from the gauze itching him!). Here's what the doc said:
-Once Frankie is 100% healed from his heart surgery, they will bring him in and consider his first repair surgery.
-Frankie has to have the "okay" from cardiology before any repair work can be done. Once his heart is fixed, that's out of the equation but his lungs will need to be very, very strong. When they start to put things back in, it will feel like he's had three Thanksgiving dinners and it will make him breath harder at first, until he's used to it.
-When will this be? Not until he's AT LEAST 2. We must remember, we are on Frankie time. And he needs a good amount of time to recover from his heart surgery.
-After Frankie's heart surgery, he should be able to grow much better since his heart wont be working over time. Frankie still needs to be larger to put things back in. He's still a little guy.
-It will take most likely 2 surgeries for him to be closed up. Definitely not just 1.
-Most likely have to use a "patch" to help close up his abdominal muscles.

All of this is good news. Let's get Frankie through this heart surgery, give him time to GROW LIKE A WEED! And then we can start working on his tummy! Which is knows now and will pat it when asked and it's extremely cute. That's it for now! Love you all! Here's a picture of him doing his usual.... Hamming it up!


2 comments:

  1. aubrey schmidt (fellow MOO)August 23, 2012 at 4:51 PM

    that is what i told Daniel's urologist about doing anything for his bladder...we finally got that boy growing and caughting up...i am not going back step him till he has really grown and caught up lol. stay strong :) hugs...Frankie is still such a doll baby!!!

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  2. Another piece of good news to me is that all of this is in no way affecting his development. He is at least as advanced as his peers, and I would guess even more so. I think you two can take a lot of credit for that.

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