Thanks for all the love, prayers and support. Xoxo.
Thursday, April 25, 2013
Weight check...
In January, Frankie weighed a little over 20lbs. A few weeks after Lu was born, he got a nasty stomach virus that took him down to 18lbs- almost 19lbs. Yesterday at the pediatrician, he was back up to 20lbs! He's recovered those 2lbs! Sweet! We are going to continue to give him extra calories as he is still so small that he's not on the growth chart for weight. I'm praying he can continue to gain weight and good, so that way he's ready for his belly surgery. He needs all the extra weight he can get. It's so crazy to have one child not on the charts and the other in the 93rd percentile in weight! Talk about the extremes! Anyhow, that's all for now. Next appointment is with cardiology on May 16th.
Thanks for all the love, prayers and support. Xoxo.
Thanks for all the love, prayers and support. Xoxo.
Monday, April 22, 2013
Quick update!
Hey all! Sorry I haven't posted lately! No news is GOOD news!
Frankie is the BEST big brother ever! He is the sweetest, funniest, kind hearted little boy! He loves his Lulu!
We go see cardiology in about 2 weeks to talk about getting clearance for belly repair in June.
Wednesday Frankie goes to see the pediatrician to get a weight check. A few weeks after Lucia was born, frankie came down with a nasty, wicked stomach virus that landed him in the hospital 2 nights. And he lost a lot of weight. We've been giving him more calories in hopes to gain that weight back. Lucia will have her 8 week check up that day, too!
Frankie speaks so well now! It's crazy! 3 word sentences sometimes 4 words! He does puzzles, runs, attempts to jump, climbs everything, and is as busy as ever! Loves to slide and be outside now that the weather is finally warming up!
We're still seeing Frankie's Ot twice a week to help with eating. He is slowly eating more and more by mouth and will try almost anything.
I think we finally have Frankie's sleep back to normal. He was having severe separation anxiety for a couple weeks. He would literally have panic attacks at bed time. It was heart breaking. He seems to have come around on that though. He still doesn't like when I go to the bath, to do laundry or run upstairs to grab something. Often that leads to tears and lots of calling out for mama! God love him.
Overall, Frankie rocks! He's so cool! Fun little dude to be around! I'll update again after his pediatrician on Wednesday with hopefully good news on his weight! Love to you all!
Frankie is the BEST big brother ever! He is the sweetest, funniest, kind hearted little boy! He loves his Lulu!
We go see cardiology in about 2 weeks to talk about getting clearance for belly repair in June.
Wednesday Frankie goes to see the pediatrician to get a weight check. A few weeks after Lucia was born, frankie came down with a nasty, wicked stomach virus that landed him in the hospital 2 nights. And he lost a lot of weight. We've been giving him more calories in hopes to gain that weight back. Lucia will have her 8 week check up that day, too!
Frankie speaks so well now! It's crazy! 3 word sentences sometimes 4 words! He does puzzles, runs, attempts to jump, climbs everything, and is as busy as ever! Loves to slide and be outside now that the weather is finally warming up!
We're still seeing Frankie's Ot twice a week to help with eating. He is slowly eating more and more by mouth and will try almost anything.
I think we finally have Frankie's sleep back to normal. He was having severe separation anxiety for a couple weeks. He would literally have panic attacks at bed time. It was heart breaking. He seems to have come around on that though. He still doesn't like when I go to the bath, to do laundry or run upstairs to grab something. Often that leads to tears and lots of calling out for mama! God love him.
Overall, Frankie rocks! He's so cool! Fun little dude to be around! I'll update again after his pediatrician on Wednesday with hopefully good news on his weight! Love to you all!
Thursday, February 21, 2013
Light at the end of the tunnel?
Long time no post! I can't say that's a bad thing! Where to start? Frankie is doing exceptional!
Today, Joe and I took him for a surgery follow up appointment. We had a lot to discuss with Dr. Keller (pediatric surgeon). Joe and I both wanted to express our concerns (some things we did not agree on. Typical in life.) about Frankie's belly. Overall, his belly is doing great. The concerns lied within the wrapping of his belly and his feeding tube.
-Will the wrapping cause scoliosis?
-Will is deform his rib cage?
-Feeding tube makes him gag.
-Pulls tube out.
-Tape tears up his skin.
The list could go on and on.
Joe, more so than I, is ready to start the process of getting little Frankie all put back together. Of course, I want my child to be "normal" and be finished with his surgeries but the thought of it makes me absolutely sick. After talking with the doctor today, I feel better. Not completely, but I feel as if this process is ready to start. Here is what the doctor said...
He is ready to get the ball rolling on putting Frankie's organs inside. We have to have cardiology's approval first. We will be seeing cardiology on May 14th and we will see surgery that day, too. If cardiology gives the "all clear" on Frankie's heart and lungs, then Dr. Keller wants to get him on the books for June. His first repair, possibly his only repair, but his first for sure.
What exactly will be done? Dr, Keller will open up Frankie's O and lay things where they go for an O baby. Hopefully there is enough of his own muscles there (he felt a lot of muscle today which is nice), if not, they will use a piece of mesh to hold them together. Frankie has some good skin grown up on his O and they will use that when closing him up on the outside. There is a good chance that they will use a small piece of alloderm also since he doesn't have a ton of the good skin to use. Alloderm is collagen sheet obtained from human organ donors. It consists of the deepest layers of skin and contains no living cells. This is commonly used among the O babies that I've seen. While he is in there, Dr. Keller will try and put a g-tube in as well. A g-tube is a tube inserted through the abdomen that delivers nutrition directly to the stomach. We are really hoping that this can be done at the same time so that Frankie's face, throat and nose will be free of the ng tube and hopefully it will promote better eating. If he is unable to put the g-tube in, it will be placed a few months after the repair surgery. Frankie is currently still getting 75% of his nutrition via tube and the other 25% he eats orally or not at all. Some days are better than others.
There is no exact plan of what will take place or how things will be placed until the doctor gets in there and starts on things. Each O case is just so different and complex. I am happy to know that the doctor thinks that Frankie looks great and is ready to begin this. I just didn't want to rush in to something this serious and not have him be ready. Frankie will be in the hospital for awhile, not sure on the time frame. My guess is a couple weeks or so. Hopefully he will only be on the ventilator and need that breathing assistance for 24 hours or less. It all depends on how his lungs and heart react, which I'm sure will be fine since his heart is repaired. After surgery is complete he will either be in the PICU (pediatric ICU) or back in the CICU (Cardiac ICU). The only reason he would go to the CICU is if the cardiologist becomes concerned with his heart and lungs. Either way, surgeries team will come see Frankie where ever he is and take great care of him as usual.
Joe is really pumped to get this process going. When the doctor finished talking I told him I felt like I was going to throw up. This little man is my whole life and I just get frightened of all the "what if's" and the possibilities of things going wrong. I know the likely hood is slim but I am his mama. It's what I do! Thankfully, this child is incredibly strong and has already proven that to us many of times. I know that he will breeze through this, too.
I believe that is all for now. Feel free to ask any questions you'd like. I tried to summarize today's appointment to the best of my ability but I could have missed some things. A lot was said. Love to you all and prayers to Frankie for continuous strength, good health and growth to get him through this repair in the summer!
Today, Joe and I took him for a surgery follow up appointment. We had a lot to discuss with Dr. Keller (pediatric surgeon). Joe and I both wanted to express our concerns (some things we did not agree on. Typical in life.) about Frankie's belly. Overall, his belly is doing great. The concerns lied within the wrapping of his belly and his feeding tube.
-Will the wrapping cause scoliosis?
-Will is deform his rib cage?
-Feeding tube makes him gag.
-Pulls tube out.
-Tape tears up his skin.
The list could go on and on.
Joe, more so than I, is ready to start the process of getting little Frankie all put back together. Of course, I want my child to be "normal" and be finished with his surgeries but the thought of it makes me absolutely sick. After talking with the doctor today, I feel better. Not completely, but I feel as if this process is ready to start. Here is what the doctor said...
He is ready to get the ball rolling on putting Frankie's organs inside. We have to have cardiology's approval first. We will be seeing cardiology on May 14th and we will see surgery that day, too. If cardiology gives the "all clear" on Frankie's heart and lungs, then Dr. Keller wants to get him on the books for June. His first repair, possibly his only repair, but his first for sure.
What exactly will be done? Dr, Keller will open up Frankie's O and lay things where they go for an O baby. Hopefully there is enough of his own muscles there (he felt a lot of muscle today which is nice), if not, they will use a piece of mesh to hold them together. Frankie has some good skin grown up on his O and they will use that when closing him up on the outside. There is a good chance that they will use a small piece of alloderm also since he doesn't have a ton of the good skin to use. Alloderm is collagen sheet obtained from human organ donors. It consists of the deepest layers of skin and contains no living cells. This is commonly used among the O babies that I've seen. While he is in there, Dr. Keller will try and put a g-tube in as well. A g-tube is a tube inserted through the abdomen that delivers nutrition directly to the stomach. We are really hoping that this can be done at the same time so that Frankie's face, throat and nose will be free of the ng tube and hopefully it will promote better eating. If he is unable to put the g-tube in, it will be placed a few months after the repair surgery. Frankie is currently still getting 75% of his nutrition via tube and the other 25% he eats orally or not at all. Some days are better than others.
There is no exact plan of what will take place or how things will be placed until the doctor gets in there and starts on things. Each O case is just so different and complex. I am happy to know that the doctor thinks that Frankie looks great and is ready to begin this. I just didn't want to rush in to something this serious and not have him be ready. Frankie will be in the hospital for awhile, not sure on the time frame. My guess is a couple weeks or so. Hopefully he will only be on the ventilator and need that breathing assistance for 24 hours or less. It all depends on how his lungs and heart react, which I'm sure will be fine since his heart is repaired. After surgery is complete he will either be in the PICU (pediatric ICU) or back in the CICU (Cardiac ICU). The only reason he would go to the CICU is if the cardiologist becomes concerned with his heart and lungs. Either way, surgeries team will come see Frankie where ever he is and take great care of him as usual.
Joe is really pumped to get this process going. When the doctor finished talking I told him I felt like I was going to throw up. This little man is my whole life and I just get frightened of all the "what if's" and the possibilities of things going wrong. I know the likely hood is slim but I am his mama. It's what I do! Thankfully, this child is incredibly strong and has already proven that to us many of times. I know that he will breeze through this, too.
I believe that is all for now. Feel free to ask any questions you'd like. I tried to summarize today's appointment to the best of my ability but I could have missed some things. A lot was said. Love to you all and prayers to Frankie for continuous strength, good health and growth to get him through this repair in the summer!
Saturday, December 29, 2012
Tummy Update
Well, we haven't even really talked about Frankie's tummy too much recently! It has been on the back burner for so long now! There isn't any new info that needs to be said but I figured we would post some pictures of his tummy so that everyone can see how it has progressed. When I took him to the surgeons a couple months ago, Dr. Keller said that he is still far too small to start any repairs. I am taking him back in February, just for another check up, and I'm sure they will say the same thing. He said he wouldn't consider a repair until he is AT LEAST two. I can see it being longer just because Frankie is so small. But, who knows! As normal, we are on Frankie time! And we have to do what is best for him! Shoving everything back in when he's not ready is the worst thing we can do for him. I don't want him to be hospitalized for a long time again and come across more complications. Anyhow... Here's some pictures. Ps- Yes, I was slacking at the crack of dawn this morning and my cloth diapers were in the other room so I grabbed a disposable!
Completely unwrapped, hanging down because he's standing up.
Wrapped in Xeroform and then gauze.
Complete! Last step is to compression wrap with an Ace Bandage.
We are so thankful that Frankie has been doing so incredibly well! And that his O has reduced in size! He is SUCH a miracle! And we are thankful for all of you each and everyday for praying for him, continuously! Much love!
Thursday, December 20, 2012
Food, food, food!
If only Frankie loved it as much as I did! Hopefully someday soon!
Over the last several days, Frankie has taken to eating a little better. Well, for him, it's a huge step. I'm very hopeful that this is a step in the right direction! About a month before his asd repair, I took Frankie to Children's for a feeding evaluation and was not happy with the outcome. It just wasn't what I had anticipated and I was not impressed with the staff. I must say, I was pretty heart broken because we do everything through Children's and I was pretty bummed that this is one thing I'd have to find elsewhere.
Today, I took Frankie to Cardinal Glennon (another children's hospital in Stl). I felt like I was cheating on Children's, but hey! You gotta do what you gotta do! I was super happy with how things went today! The ladies were so very nice and offered some great suggestions and also reinforced all the great things we already do for Frankie! It's so nice to hear sometimes that you are doing this right! This is going to be a slow moving process for Frankie but he is finally showing signs of interest and this is a window of opportunity that we have been waiting for and we HAVE to take advantage of it! We made a couple small changes to Frankie's feeding schedule. I'm going to implement them daily and we have a follow up appointment on Jan. 3rd to check his weight and see how this is working for him and make adjustments as needed.
Tonight, I sent out an email to Frankie's wonderful First Steps team. These are the gals that come out to the house and help with Frankie. Ellen is Frankie's occupational therapist who comes weekly. Angela is Frankie's physical therapist who comes twice a month and Nancy is Frankie's dietitian who comes monthly but I speak to frequently through email, text, phone. In the email I addressed how Frankie has been lately (his Ot has seen it and agrees!) and my concern. My concern being the amount of time we see Ellen. Since we are in the "now or never" stage, I think it is best that Frankie gets bumped up to twice a week with Ellen until he gets the hang of things. Once I get an initial email reply, I will also suggest reducing pt down once a month since Frankie is doing so well. That may not happen until March but I think his ot visits need to be increased asap.
Overall, I was impressed with Cardinal Glennon's feeding team today and I'm praying HARD that Frankie is making his first big steps to oral eating! He's taken to a few foods recently:
-club cracker
-peanut butter
-thin sliced turkey
-cheerios
He eats these in small amounts but they are amounts!
Thanks for all the positive thoughts, love, support and prayers! FRANKIE CAN DO THIS! We can't wait for the day that we say GOODBYE to the ng tube!
Over the last several days, Frankie has taken to eating a little better. Well, for him, it's a huge step. I'm very hopeful that this is a step in the right direction! About a month before his asd repair, I took Frankie to Children's for a feeding evaluation and was not happy with the outcome. It just wasn't what I had anticipated and I was not impressed with the staff. I must say, I was pretty heart broken because we do everything through Children's and I was pretty bummed that this is one thing I'd have to find elsewhere.
Today, I took Frankie to Cardinal Glennon (another children's hospital in Stl). I felt like I was cheating on Children's, but hey! You gotta do what you gotta do! I was super happy with how things went today! The ladies were so very nice and offered some great suggestions and also reinforced all the great things we already do for Frankie! It's so nice to hear sometimes that you are doing this right! This is going to be a slow moving process for Frankie but he is finally showing signs of interest and this is a window of opportunity that we have been waiting for and we HAVE to take advantage of it! We made a couple small changes to Frankie's feeding schedule. I'm going to implement them daily and we have a follow up appointment on Jan. 3rd to check his weight and see how this is working for him and make adjustments as needed.
Tonight, I sent out an email to Frankie's wonderful First Steps team. These are the gals that come out to the house and help with Frankie. Ellen is Frankie's occupational therapist who comes weekly. Angela is Frankie's physical therapist who comes twice a month and Nancy is Frankie's dietitian who comes monthly but I speak to frequently through email, text, phone. In the email I addressed how Frankie has been lately (his Ot has seen it and agrees!) and my concern. My concern being the amount of time we see Ellen. Since we are in the "now or never" stage, I think it is best that Frankie gets bumped up to twice a week with Ellen until he gets the hang of things. Once I get an initial email reply, I will also suggest reducing pt down once a month since Frankie is doing so well. That may not happen until March but I think his ot visits need to be increased asap.
Overall, I was impressed with Cardinal Glennon's feeding team today and I'm praying HARD that Frankie is making his first big steps to oral eating! He's taken to a few foods recently:
-club cracker
-peanut butter
-thin sliced turkey
-cheerios
He eats these in small amounts but they are amounts!
Thanks for all the positive thoughts, love, support and prayers! FRANKIE CAN DO THIS! We can't wait for the day that we say GOODBYE to the ng tube!
Tuesday, December 18, 2012
15 month update!
Frankie DiFranco is 15 months old! I can not believe it! He has changed so much since he turned 1! What's new with Frankie... Let me name a few things:
-He's looking much more like a little toddler boy! It's freaking me out!
-The toddler attitude is in full affect! And, I wouldn't have it any other way. It's part of development and there are some hilarious moments that come pouring out of this bambino now! I can't get enough of him!
-HE'S WALKING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! (He actually accomplished this at 14 months to be exact!)
-He's starting to stand, without help, in the middle of the floor (he did it twice now today!).
-His vocab is expanding rapidly! The kid says a ton! Here are a couple of my favorites:
-I did it!
-Love you!
-Yellow
-Buddha
-He has taken to a few books that I must read over and over and over and over and over and over. God love him. He's lucky I'm all about reading to kids. I will seriously sit here and read it as many times as he would like. It's so good for him! Favorite books:
-Barnyard Dance by Sandra Boynton
-One, Two, Three by Sandra Boynton (She's one of our favorite authors. She rocks.)
-Tractor, a Touch and Feel Book
-Elmo:Balls! (newest obsession)
-He's become more affectionate and lovely/cuddly. Really likes to give us kisses and hugs.
-He's sleeping with his little booty popped up in the air! Which means he's on his belly. Super cool for an O kid.
-He's more interested in "snacks" and "num nums". The last two days especially. He's liking to try more and more new things where he would typically stick with plain and or Honey Nut Cheerios. Hoping we are making a turn here!
-Teeth... HELLO molars! Frankie has 10 teeth now! That's right! 10! Now we just have to get him to use them more.... we are getting there!
-Singing songs! Oh yes! And doing the hand motions! Some favorites:
-Patty Cake
-Itsy Bitsy Spider
-Wheels on the Bus
-Touching the Christmas tree while shaking his head and saying, "No, no, no". He actually gets himself in trouble a lot because he says "No, no" as he is going to do it. Like pull the books off the shelf. :)
-Whenever he wants to see the Christmas lights or he does see them he says, "Ights, ights!" The joy on his face is priceless!
-I love this one! He says "Co, Co" for uncle Cody. ADORABLE!
-Whenever he is stuck or in a situation he doesn't like or it's not going his way he says "Tuck!" to get my attention. I've taught him I don't respond to the whining. Mama's ears can't handle it. But, when you use your words, I'll be there in a split second!
-He is hiding behind walls to play hide and seek! Not just us hiding anymore, HE is hiding now, too! And he loves it!
-This will melt your heart.... Reaching up to you when he wants to be picked up.... How could you EVER say no?! Oh, that's right I don't (I may regret this one day but until then, I'm soaking it up!) Those big, blue, sweet eyes! Ugh... Gotta pick that baby up!
-If you aren't paying attention to Frankie and he wants it, lets start counting how many times he will say "Hi!" and bat those pretty eyes at you! He is so good at salutations I tell ya!
15 month pediatrician appointment today:
Dr. Terrill is impressed with Frankie! She said he looks fantastic! :) This makes me oh-so very happy! She loves that he is walking around and how well he is doing it! He is in the 30th percentile for height! CAN YOU BELIEVE IT?! We hit the charts on something! Woohooo! His weight on the other hand is low. 18lbs 5oz. But, his height has continuously increased which is what is best! This means that he is getting enough calories to grow and isn't malnourished. She said children who are, do not grow in length. His head size is smaller too, but it matches his body! We don't want a little baby with a big old head! How funny would that be?! Haha! He's just perfect! It's hard to fatten him because he's so busy but I will at least work more towards some what of a gain in the next month-three months when we see her again. Frankie has two 15 month shots to get and his second flu shot. I will be getting him those within the next 2 weeks. His lungs and heart sounded great today, too. It was such a nice appointment! To go, do the normal and leave with no extra instructions and complications was really nice!
Next appointments: Thursday 12-20-12 we are going to Cardinal Glennon (So weird not to be at Children's but we need to try this) and are getting a feeding evaluation from their feeding team there. It will be interesting and I will keep everyone posted.
Umm... at some point in the next couple months we will see surgery again to check up on the the old hydrocele in the testicle. But, I think that's it! Until his 18 month appointment with the pediatrician! Praying all stays as well as it has been! We have been so blessed to be going down a good road for awhile! This will be our FIRST Christmas at home and we are beyong excited! I will definitely have a post after that for sure and after the feed eval on Thursday.
Thank you all for your everyday support, love and prayers! They mean everything to us!
PICTURE TIME!
-He's looking much more like a little toddler boy! It's freaking me out!
-The toddler attitude is in full affect! And, I wouldn't have it any other way. It's part of development and there are some hilarious moments that come pouring out of this bambino now! I can't get enough of him!
-HE'S WALKING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! (He actually accomplished this at 14 months to be exact!)
-He's starting to stand, without help, in the middle of the floor (he did it twice now today!).
-His vocab is expanding rapidly! The kid says a ton! Here are a couple of my favorites:
-I did it!
-Love you!
-Yellow
-Buddha
-He has taken to a few books that I must read over and over and over and over and over and over. God love him. He's lucky I'm all about reading to kids. I will seriously sit here and read it as many times as he would like. It's so good for him! Favorite books:
-Barnyard Dance by Sandra Boynton
-One, Two, Three by Sandra Boynton (She's one of our favorite authors. She rocks.)
-Tractor, a Touch and Feel Book
-Elmo:Balls! (newest obsession)
-He's become more affectionate and lovely/cuddly. Really likes to give us kisses and hugs.
-He's sleeping with his little booty popped up in the air! Which means he's on his belly. Super cool for an O kid.
-He's more interested in "snacks" and "num nums". The last two days especially. He's liking to try more and more new things where he would typically stick with plain and or Honey Nut Cheerios. Hoping we are making a turn here!
-Teeth... HELLO molars! Frankie has 10 teeth now! That's right! 10! Now we just have to get him to use them more.... we are getting there!
-Singing songs! Oh yes! And doing the hand motions! Some favorites:
-Patty Cake
-Itsy Bitsy Spider
-Wheels on the Bus
-Touching the Christmas tree while shaking his head and saying, "No, no, no". He actually gets himself in trouble a lot because he says "No, no" as he is going to do it. Like pull the books off the shelf. :)
-Whenever he wants to see the Christmas lights or he does see them he says, "Ights, ights!" The joy on his face is priceless!
-I love this one! He says "Co, Co" for uncle Cody. ADORABLE!
-Whenever he is stuck or in a situation he doesn't like or it's not going his way he says "Tuck!" to get my attention. I've taught him I don't respond to the whining. Mama's ears can't handle it. But, when you use your words, I'll be there in a split second!
-He is hiding behind walls to play hide and seek! Not just us hiding anymore, HE is hiding now, too! And he loves it!
-This will melt your heart.... Reaching up to you when he wants to be picked up.... How could you EVER say no?! Oh, that's right I don't (I may regret this one day but until then, I'm soaking it up!) Those big, blue, sweet eyes! Ugh... Gotta pick that baby up!
-If you aren't paying attention to Frankie and he wants it, lets start counting how many times he will say "Hi!" and bat those pretty eyes at you! He is so good at salutations I tell ya!
15 month pediatrician appointment today:
Dr. Terrill is impressed with Frankie! She said he looks fantastic! :) This makes me oh-so very happy! She loves that he is walking around and how well he is doing it! He is in the 30th percentile for height! CAN YOU BELIEVE IT?! We hit the charts on something! Woohooo! His weight on the other hand is low. 18lbs 5oz. But, his height has continuously increased which is what is best! This means that he is getting enough calories to grow and isn't malnourished. She said children who are, do not grow in length. His head size is smaller too, but it matches his body! We don't want a little baby with a big old head! How funny would that be?! Haha! He's just perfect! It's hard to fatten him because he's so busy but I will at least work more towards some what of a gain in the next month-three months when we see her again. Frankie has two 15 month shots to get and his second flu shot. I will be getting him those within the next 2 weeks. His lungs and heart sounded great today, too. It was such a nice appointment! To go, do the normal and leave with no extra instructions and complications was really nice!
Next appointments: Thursday 12-20-12 we are going to Cardinal Glennon (So weird not to be at Children's but we need to try this) and are getting a feeding evaluation from their feeding team there. It will be interesting and I will keep everyone posted.
Umm... at some point in the next couple months we will see surgery again to check up on the the old hydrocele in the testicle. But, I think that's it! Until his 18 month appointment with the pediatrician! Praying all stays as well as it has been! We have been so blessed to be going down a good road for awhile! This will be our FIRST Christmas at home and we are beyong excited! I will definitely have a post after that for sure and after the feed eval on Thursday.
Thank you all for your everyday support, love and prayers! They mean everything to us!
PICTURE TIME!
Gettin' down on that french fry! Hell yes!
Pudding, peanut butter and cracker, OH MY! :) So much fun!
Yup, that's my son!
Tuesday, November 27, 2012
Tis' the season... For colds that is!
Yes, this is a repetitive, protective mama bear post, but someone's gotta do it.
Trust me. I know how adorable little Frankie bear is. All I want to do is kiss and kiss and kiss on him. And squeeze him! And I do, but I'm his mama. Lucky me! :) But, after going through Thanksgiving and with Christmas just around the corner, I can not stress enough how important it is for Frankie to remain healthy this cold/flu season. If we are to make it to all of the family events this season, everyone and I mean EVERYONE must help us out. That being said, please, please, PLEASE....
- Wash your hands! And often. It's not only good for Frankie but for you, too! And everyone else around you. Good hygiene isn't a bad thing folks! Especially after using the restroom. Come on now, do I really need to be telling people this? Apparently.
-Kisses. This is tough. Frankie is so sweet and will throw out a kick to just about anyone who asks but, I think we need to be a little more careful with all the people we have been exposed to lately and who they've been exposed to and so on. It's endless.
-If you feel a little puny, we will see ya next time! ;) No worries. Tomorrow is always another day.
-If you have been around someone who's sick or not feeling well, we will see ya next time. Tomorrow is always another day.
I know I may sound crazy to some folks but you have to understand. My child isn't the "typical" child and I have to do what's best for him. As the cardiologist stated himself, "His lungs aren't in the clear yet." That means we still need to be careful so that we don't end up hospitalized again. That's not fun and can be very serious. That's why Frankie gets the RSV shots again this season which cost $5,000 a pop (1 a month for 5-6 months). Thank God for health insurance. But, they only give these shots to the children who are truly, truly in need.
Yes, he needs to be exposed to some things on order to build his system. He has been exposed. Over and over. That's why I write this.
So please, say what you will about this mama, just help me keep my child healthy so that we can see you through the holidays and everyday. Thanks a bunch! I sincerely mean that! Much love!
Trust me. I know how adorable little Frankie bear is. All I want to do is kiss and kiss and kiss on him. And squeeze him! And I do, but I'm his mama. Lucky me! :) But, after going through Thanksgiving and with Christmas just around the corner, I can not stress enough how important it is for Frankie to remain healthy this cold/flu season. If we are to make it to all of the family events this season, everyone and I mean EVERYONE must help us out. That being said, please, please, PLEASE....
- Wash your hands! And often. It's not only good for Frankie but for you, too! And everyone else around you. Good hygiene isn't a bad thing folks! Especially after using the restroom. Come on now, do I really need to be telling people this? Apparently.
-Kisses. This is tough. Frankie is so sweet and will throw out a kick to just about anyone who asks but, I think we need to be a little more careful with all the people we have been exposed to lately and who they've been exposed to and so on. It's endless.
-If you feel a little puny, we will see ya next time! ;) No worries. Tomorrow is always another day.
-If you have been around someone who's sick or not feeling well, we will see ya next time. Tomorrow is always another day.
I know I may sound crazy to some folks but you have to understand. My child isn't the "typical" child and I have to do what's best for him. As the cardiologist stated himself, "His lungs aren't in the clear yet." That means we still need to be careful so that we don't end up hospitalized again. That's not fun and can be very serious. That's why Frankie gets the RSV shots again this season which cost $5,000 a pop (1 a month for 5-6 months). Thank God for health insurance. But, they only give these shots to the children who are truly, truly in need.
Yes, he needs to be exposed to some things on order to build his system. He has been exposed. Over and over. That's why I write this.
So please, say what you will about this mama, just help me keep my child healthy so that we can see you through the holidays and everyday. Thanks a bunch! I sincerely mean that! Much love!
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